I/DD Community & Government Resources & Organizations

Resources, organizations, and support for I/DD clients and families

Intellectual and/or developmental disabilities and all that goes with them, from required financial planning to community involvement, can be daunting. Collecting information is vital.

We know that I/DD support is invaluable

Resources, organizations, and support are critical to I/DD clients and families.

Together, these groups and programs work to ease the I/DD journey—from initial education and state policy to nonprofit organizations that welcome you into their communities. We recommend researching and engaging with resources like the ones below.

In addition to these listed, we also exist as a resource for you. See our blog for timely and educational articles about a range of topics from waiver changes to caregiver concerns and evidence-based practices. And, as always, feel free to contact us for specific needs or services.

National I/DD Resources

National Association for the Dually Diagnosed (NADD)

NADD is now considered the leader in education, consultation, and training related to the IDD/MI dual diagnosis. NADD influences policies at the national, state, and local levels…

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American Association on Intellectual and Developmental Disabilities (AAIDD)

AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities…

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Drug Digest - Medication Information

Search for medication by condition or drug category. Always consult with a doctor or other healthcare professional before administering prescription and nonprescription medications…

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National Council on Disabilities

NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect…

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North Carolina I/DD Resources

The Dept. of Health and Human Services

The NCDHHS manages the delivery of health- and human-related services for all North Carolinians, especially our most vulnerable citizens – children, elderly, disabled and…

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The Family Support Network of NC

The Family Support Network of NC provides information, family support groups and parent to parent matching. They also publish an annual summer camp directory…

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The NC Council on Developmental Disabilities

NCCDD has 40 members appointed by the Governor of which 60 percent are required to be people with intellectual or other developmental disabilities (I/DD) or family members. Others…

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NC Early Intervention

NC Early Intervention is the system of services and programs for children birth to five who have, or are at risk of having developmental delays…

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Florida I/DD Resources

Agency for Persons with Disabilities

The APD works in partnership with local communities and private providers to assist people who have developmental disabilities and their families. APD also provides…

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The Agency for HealthCare Administration

ACHC was statutorily created by Chapter 20, Florida Statutes as the chief health policy and planning entity for the state. They are primarily…

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Qlarant

Qlarant is contracted by the State of Florida’s Agency for Health Care Administration (AHCA) to provide quality assurance for the State’s Developmental Disabilities Services system. They work in partnership…

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The Family Café

Since 1998, The Annual Family Café has brought together thousands of individuals with disabilities and their family members for three days of information, training and networking each June.

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Florida Developmental Disabilities Council

The Florida Developmental Disabilites Council (FDDC) has a 46 year history of leveraging up to $3.6 million federally appropriated dollars annually through the Developmental Disabilities Act to…

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Disability Rights Florida

Disability Rights Florida was founded in 1977 as the statewide designated protection and advocacy system for individuals with disabilities in the State of Florida.

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Employment Resources

Department of Vocational Rehabilitation (VR)

A nationwide federal-state program for assisting eligible people with disabilities to define a suitable employment goal and become employed. Each state capital has a central VR agency

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Housing Resources

The Arc of North Carolina

The Arc of North Carolina is a leader in the state in providing housing options and property management services to North Carolinians with disabilities…

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Legal Aid & Rights

Disability Rights North Carolina

DRNC is NC’s federally mandated statewide protection and advocacy program committed to promoting and preserving disability rights in the North Carolina.

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Life Plan Trust

Life Plan Trust provides information on planning for the future for families of people with disabilities.

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The NC Guardianship Association

The NC Guardianship Association provides education and training resources.

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Health & Safety I/DD Resources

NC 2-1-1

NC 2-1-1 is an information and referral service provided by United Way of North Carolina. Accessible via an easy-to-remember, three-digit number, families and individuals can call…

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Ready NC

Disaster preparedness, emergency alerts, pets and service animals, evacuation alerts-how to plan and prepare…

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Mental Health / Substance Resources

The National Alliance on Mental Illness

The National Alliance for the Mentally Ill in North Carolina provides information and resources related to mental illness…

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HopeLine NC

HopeLine provides the community with a free and confidential crisis and suicide prevention helpline and texting service. This includes supportive and non-judgmental listening, gentle…

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The Substance Abuse and Mental Health Services Administration

SAMHSA is the agency within the U.S. Department of Health and Human Services that leads public health efforts to advance the behavioral health of the nation.

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Transportation & Travel Resources

National Aging and Disability Transportation Center

Ensuring that older adults and people with disabilities know about the transportation choices available in their community and understand how to access these options.

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NC 2-1-1

Disability related transportation services directory.

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Access NC

Travel site accessibility guide for individuals with disabilities.

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CBC Blog as a Resource

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Contact us or call us at 919-390-2980 for help finding additional resources or information.

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